Check out the below links to learn more about Cystic Fibrosis, organ transplants and how to become and organ donor! 

Cystic Fibrosis Foundation

Transplant info

Become an organ donor

Update from Brooklyn

Update from Brooklyn

It's been a little while since I (Laima) last posted. A few new things have happened. One major one is that I'm in Brooklyn for the next month or so. My amazing best friend Emily is letting me stay in her room while I'm here. You might be wondering why I'm staying in Brooklyn for so long. Well, it's because of a few things. 1. I don't have a job yet so there were no obligations keeping me in Denver, other than Rima of course. 2. Rima is doing okay for right now so I felt fine about leaving her for about a month and seeing my friends. 3. I want to enjoy some "me" time before "shit" hits the fan this fall. Storing up lots of amazing memories to last me through the transplant. 4. Before I left Brooklyn I was working so much and was so stressed about the move, the transplant, and Rima that I was unable to really enjoy my last few months in Brooklyn. Now I've been able to laugh and smile with friends for the first time before everything happened without feeling bad about it. 5. I'll be going up to Boston and Maine at the end of July to visit my family, Rima and Paulius will also be flying in from Denver for this "mini-Family reunion". We are very excited for it! 

  Riss beach

Riss beach

So those are the main reasons why I'm here, I really do love Denver and Colorado. I moved to be close to Rima and spend time with her. But, I'm also a very social person so the last few months have been kind of hard not having a good friend group in the area. I know a few people but nothing like my Brooklyn family. Rima wanted to move and she did it. I moved for her but now I'm going to take a little time for myself and fill up my friend bank for the up coming months. 

While I'm here I've started to write about everything that's going on in more detail than what we've included in past blog posts. In short, I'm composing a book. It's a story that needs to be told and not just through a blog. The book will include background on what it was like growing up with a sibling with CF, through my eyes and also through Rima's perspective. It will also dive into depth about how we got to this place and everything and anything we've learned along the way about transplants specifically double lung. Of course the book will have more than these subjects but that's the gist of it. 

Rima will still be posting about her adventures in Denver and any updates that come her way health wise. I'm going to be writing and doing lots of research on CF and transplants so keep an eye out for more of the informative blog posts. I miss Rima so much, it's amazing that we have something like this to connect us in addition to texting and phones calls. I'd say we're lucky ladies. 

  River adventures with my Brooklyn family

River adventures with my Brooklyn family

Feeling blah for days

Feeling blah for days

Just a bunch of hot air

Just a bunch of hot air