Check out the below links to learn more about Cystic Fibrosis, organ transplants and how to become and organ donor! 

Cystic Fibrosis Foundation

Transplant info

Become an organ donor

Call us Lewis and Clark

Call us Lewis and Clark

Good news...knock on wood, Rima has been fever free for five days, today will be day number six with no fevers. This is GREAT news. Hopefully they STAY AWAY. Do you hear that Rima's body...no...MORE...FEVERSSSSS. She is also back on the transplant list, phew! Hopefully this means her antibiotic cocktail is working. I'm going to be honest...if her fevers keep coming back and we have to do this on the list for two days, off the list for four days dance, I'm going to be found at the bottom of a Hendricks bottle...no lie. So again, universe...NO MORE...no. 

This up coming Monday will be four full weeks in the hospital. That is also four weeks of me living by myself. I'm not a fan! I lived in an apartment with four friends in Brooklyn and two dogs and then next door four other friends and another dog, for a long time! We had an open door policy and always had people over. So I went from oh I don't know, like 10 roommates....to me, myself, and I. I keep telling Rima she needs to come home. But, her body has other plans, how rude! 

How is Rima's mental state? Well, good thing she can leave her room for a little bit once or twice a day. Otherwise I'm pretty sure she would have already tried to knock out a window and make an escape rope with hospital blankets. I would be driving the get away car. We are quite the adventurous minded pair, so thankfully the hospital grounds are expansive enough to allow us to get lost, more than just once. Rima has taken up a habit of wondering dimly lit basement hallways right around midnight. Yeah, I know...what a creeper. Don't bump into her down there.

If you follow her on snap chat then you've probably seen the strange places she goes. We made a friend who works in the maintenance department and he showed us to a whole new area and building cluster that is part of the university through some very cool tunnels. In this building is a HUGE book store/school store, a cafe with several food vender choices, a post office, a bar with pool table, and a bowling alley! Oh and apparently a movie theatre as well, but it doesn't show new releases. Rima and I were little kids in a candy store. We can't wait to go back everyday and explore even more. It was so nice for her to feel as if she was not in the hospital anymore. 

Her IV schedule is not as consistent and on time as she would like, so the spouts of freedom time change almost daily. They are stopping some "unnecessary" fluids before and after her Colistin, altering the fluids with other antibiotics buys her just under two extra hours of freedom. She is VERY excited about this. But of course things have to run on time for her spouts of freedom to be longer. We're going to download a pedometer app and see how far we walk. These buildings, especially the Mayo building have endless amounts of hallways to explore and strange things to see. We will be taking a wheelchair with us because if the trips last up to or over two miles she will need help. I push and she walks next to it, when she gets tired she sits and I push. I'm a good pusher, I even let go of the chair on declines and let her run into the walls....ha, no I stop her before she crashes into them...or so far I do. 

Geraldine's big night out

Geraldine's big night out

Unpleasantries

Unpleasantries