Check out the below links to learn more about Cystic Fibrosis, organ transplants and how to become and organ donor! 

Cystic Fibrosis Foundation

Transplant info

Become an organ donor

Jackpot my dears, Jack-f*ing-pot!

Jackpot my dears, Jack-f*ing-pot!

Winter is coming...no but really it is. Soon we'll be house ridden due to post transplant and cold weather. Until then I refuse to let a day go by without doing something outdoor related. Whether it's just driving around cool neighborhoods and checking out new parks or collecting sticks for our new obsession with DIY wall hangings. We're going to get our fresh air and daily vitamin D!

Last Wednesday we checked out Minnehaha Falls. Which is a waterfall and park just south of down town. It's a pretty beautiful locations. We were very impressed with Minneapolis housing a waterfall in its city limits...something Hawaii has up its sleeve. Rima decided to conquer the many steps down to the bottom of the falls to get the whole Minnehaha experience. What goes down must come up I told Rima. Meaning yes, you walked down like 110 steps but you also have to walk up 110. She did! Slowly, but boy did she show those stone steps who's boss!

Saturday I sorta dragged Rima out of our tiny apartment to check out the mill ruins in Minneapolis. This is where old mills were on the riverfront. The city did a great job of preserving some of the buildings and the landscape. Rima and I explored a little and got some cool shots in. Earlier in the morning I had gone to the Mill City Farmer Market and bought some beautiful flowers for Rima.

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The BIG news we have is that we have new housing!!! We've been renting out a very small one-bedroom apartment in an assisted living building. Wednesday our social worker called to tell us that we had moved up on the list to get a place by the hospital. The transplant center rents out about 14 apartments a couple blocks away from the hospital and rents the units out to people who undergo a transplant at MNU. There of course is a waiting list. We got on the waiting list about a week and a half ago and we were number 6 on the list. Just like the transplant list they can't tell you how long you'll be waiting for an apartment to open up. It could be a few days or months. So we assumed since we were 6th it would be a while. Well, somehow in a mater of like 9 days we moved to 2nd on the list! 

BUT, not only that but she had found us a HOUSE about 25 minutes north of the city. It's owned and run by a family in the CF community. They newly renovated this house recently to be able to rent out to families affected by CF who were in town for CF related treatments at the hospital. They had just finished the work on the house and had reached out to the hospital to see if there would be any takers. Pick me..... pick me!!! It was our very lucky day! Our social worker sent us over their site and put us in contact with the family. Within a matter of hours I got the ball rolling in locking down this home for us. I set up a time to go see it in person in a couple days. Everything was moving smoothly! 

  So long old peoples home!!!

So long old peoples home!!!

On Thursday Rima had a last minute check in appointment at MNU. The last few days her body had been "freaking out" all her joints and muscles were in a lot and I meanA LOT of pain. She  needed help getting dressed and getting out of bed. She also was hobbling around like an old lady, or one of our countless senior neighbors. Something was going on, either one of her IV's was the issue or a random medicine. So we had to go in and meet with one of the CF doctors at MNU to see what's up. After going through all her IV's and meds, the doctor had a couple guesses what could be causing all Rima's pain but nothing for sure. Rima took matters into her own hands and decided to run some experiments. She stopped one of her IV's that she has to take every 8 hours, Ceftaz. She had been on the IV before but never had pain like this. Lo and behold, she stopped it and the pain stopped. Dr. House your services may not be needed at this moment. 

During our appointment at MNU our social worker called us to let us know that they had an available apartment open on the transplant floor. We needed to make the decision almost immediately. Whether we were going to do the transplant unit apartment or the house. We were going to view the house that night. So we had to go with our gut and weigh out some pros and cons. Pro of the apartment for transplant was that it's blocks away from the hospital. The pros of the house were about 10-15 different reasons. So the house won. We checked it out that night and met Jill who runs the house and organization With One Breath . The house was amazing. Three bedrooms, 1.5 baths, huge kitchen, fully furnished and decorated. JACKPOT!!!! We signed the papers and shook hands, we had a new home for the rest of our time in Minnesota. 

Sunday was our move-in date. The last few days consisted of slowly packing. Sunday afternoon hit and the moving bug hit me hard. I transported and packed the car up twice and made the move to and from the house in record time. Try that workout ladies and gentlemen, the new sensation for your body, solo moving. Our first night in the house was great, anxiety and stress of a better living situation was pushed off my shoulders. We had room, and plenty of it. There's even a backyard where Rima can attempted some cartwheels! 

  New place!!!

New place!!!

Secret Garden

Secret Garden

East & west of the Mississippi!

East & west of the Mississippi!

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